Thursday 1 May 2008

Honestly, we have to keep a record of them!

My younger twin son had his review at the autism clinic on Tuesday. His doctor was quite interested when I told her Dill had been turned down for a statement of special educational needs because the educational psyschologist didn't think he was particularly aspergers. Call me old fashhioned but I will take the judgement of a trained medic who knows what she is talking about and how to assess these things, over the judgement of an Ed Psych who's qualifications would be broad at best any day. And I'm training to be one eventually so I know the difference in education required for the two jobs. He's got aspergers stamped right through him like Brighton through a stick of rock and the ed psych is just typical of the many hurdles that we are encountering as we try and get him through his school career. He has to cope in a mainstream environment even though I know a special school would suit him better. We're lucky in that his current school is supportive and helpful but the previous two were just useless. Unsupportive, unhelpful and downright unpleasant to deal with. Education is tough enough when you have an autistic spectrum disorder, you don't need the education system making it worse when it should be making it better.


On a plus point he is now going to be sent for some blood tests so we can see if he has a problem with gluten. If he has things like bread and pasta he gums up terribly and if I reduce or cut these things out he doesn't have so many problems. It would be nice to establish if he has a medical problem like this as it will be easy to deal with and may help. The only downside is that he has to keep a record of bowel movements for two weeks and in typical asperger fashion he is taking this very seriously! I'm keeping my fingers crossed and we shall hope that we can sort out the bowels. He has had real problems since he was a baby and if we can help him with this at least it will be one less thing that he has to cope with.